NDSSorg's video: Updates on Down Syndrome Regression Disorder: What You Need to Know

Down Syndrome Regression Disorder (DSRD) is an emerging condition where individuals rapidly lose language, communication abilities, and developmental skills over a period of weeks to months without a clear cause. This condition can be sudden and devastating for both families and individuals. This webinar with Dr. Jonathan Santoro and the National Down Syndrome Society (NDSS) focuses on the signs and symptoms of DSRD, the recommended workup for the condition, and treatment options. For more resources, please visit our website at https://ndss.org/ and the following links: NDSS Links: -NDSS Regression webpage https://ndss.org/resources/regression-down-syndrome -Down Syndrome Regression Disorder Checklist printable resource https://ndss.org/sites/default/files/2023-03/Down%20Syndrome%20Regression%20Disorder%20Checklist%20Final.pdf -NDSS newsletter sign-up https://ndss.org/ndss-newsletter Dr. Santoro’s Links: -Children’s Hospital Los Angeles Neuroimmunology Program https://www.chla.org/neurological-institute/programs-and-services/neuroimmunology-program -Children’s Hospital Los Angeles Down Syndrome Program https://www.chla.org/neurological-institute/programs-and-services/down-syndrome-neurology-program -IVIg in DSRD Paper https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10409776/ -DSRD Criteria Paper https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9335003/ -DSRD Neuroinflammation Paper https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9164321/