×

Result0's video: Baby Kaylee stable no longer a heart donor candidate

@Baby Kaylee stable, no longer a heart donor candidate
A baby girl at Toronto's Hospital for Sick Children whose parents offered her heart to a seriously ill P.E.I. infant has been on and off a respirator throughout Wednesday morning after breathing on her own overnight, her father said. Hospital officials said two-month-old Kaylee Wallace, who was believed to be terminally ill, is in stable condition and no longer an organ donor candidate after she exceeded doctors' expectations and survived being taken off the respirator on Tuesday night. Her father Jason Wallace told CBC News the experience has been an emotional roller-coaster, and he said doctors have still not been able to give a prognosis. Dr. Jim Wright, chief of surgery at Sick Kids, told CBC News on Wednesday that Kaylee will continue to be treated at the hospital's intensive care unit. "Certainly at this point, she is not a candidate for transplant," he said. Kaylee, from Bradford, Ont., suffers from Joubert syndrome, an extremely rare brain abnormality that could cause her to stop breathing during sleep. Wright said the condition comes in a variety of severities. "It was believed that Kaylee had the most severe kind and she would not be able to breathe on her own," he said. Kaylee was expected to die on Tuesday night, and surgical teams were on standby to perform a risky procedure known as death cardiac donation to harvest her heart and transplant it into one-month-old Lily O'Connor. The operation was called off after Kaylee stayed awake during the one-hour window in the operating room. Wallace and Kaylee's mother, Crystal Vitelli, had come to terms with the idea her heart would live on in another baby and had already said goodbye to their child. Lily, the recipient, was born March 9 with truncus arteriosus, a rare form of congenital heart disease that leaves her blood short of oxygen. On Saturday, Lily's parents, Kevin O'Connor and Melanie Bernard, thought they had found the miracle they were looking for when they were approached by Kaylee's parents at the hospital about a possible transplant. 'She's a fighter' Doctors at the hospital, however, initially downplayed the chances of a successful procedure, saying that when Kaylee was taken off life support, it would likely take her too long to die to make her heart useful for transplant. Speaking to reporters as they entered the hospital on Wednesday, the P.E.I. couple said they were told Lily could live "weeks to months" without a transplant. "It depends on how she is, and she's a fighter," her father said. What is Joubert syndrome? Joubert syndrome is a rare disorder that affects the cerebellar vermis area of the brain, which controls balance and co-ordination. Common signs and symptoms include: * Ataxia or lack of muscle control. * Abnormal breathing patterns. * Sleep apnea. * Decreased muscle tone. * Jerky eye movements. * Developmental delays in gross motor, fine motor and speech. * Malformations such as extra fingers and toes, cleft lip or palate and tongue abnormalities. Kidney and liver abnormalities may develop. * Seizures may occur. Common treatments include infant stimulation, physical therapy, occupational therapy, and speech therapy for developmental delays. Infants with abnormal breathing need to be monitored for apnea. In 1969, Marie Joubert first identified four cases in siblings who were admitted to Montreal Children's Hospital. The Joubert Syndrome Foundation knows of about 40 cases in Canada, said spokeswoman Karen Tompkins of Essex, Ont.

29

10
Result0
Subscribers
2.5K
Total Post
69
Total Views
4.1M
Avg. Views
81.1K
View Profile
This video was published on 2009-04-09 01:51:56 GMT by @Result0 on Youtube. Result0 has total 2.5K subscribers on Youtube and has a total of 69 video.This video has received 29 Likes which are lower than the average likes that Result0 gets . @Result0 receives an average views of 81.1K per video on Youtube.This video has received 10 comments which are lower than the average comments that Result0 gets . Overall the views for this video was lower than the average for the profile.

Other post by @Result0