WithGustoTV's video: M E Funding is TOO DAMN LOW MEchillichallenge Ep 2 10

My accountant alter-ego spent months of precious energy meticulously digging into the ME/CFS funding situation. One of the biggest reasons I created this series is to shine a spotlight on how badly we've been ignored by government funding institutions despite the enormous financial burden ME creates. TWEET CELEBS WHO'VE BEEN AFFECTED BY ME/CFS TO TAKE THE : CHER https://twitter.com/cher FLEA (RED HOT CHILLI PEPPER) https://www.facebook.com/flea/ EMMA BLACKERY https://twitter.com/emmablackery MORGAN FAIRCHILD https://twitter.com/morgfair STUART MURDOCH https://twitter.com/nee_massey USA ME/CFS CHARITIES: * CII at Columbia (Lipkin/Hornig) - http://www.bit.ly/DonateToDrLipkin * Solve ME/CFS - http://solvecfs.org/donate/ * END ME/CFS ‘Severely Ill, Big Data’ Project (US) - http://www.openmedicinefoundation.org/mecfs-severely-ill-big-data-study/ * - http://www.meaction.net/donate/ * Stanford ME/CFS Initiative - http://pgnet.stanford.edu/goto/medgift (Designate to ME/CFS Initiative) * Nova at South Eastern University - http://www.nova.edu/nim/donations.html * Mount Sinai ME/CFS Center - https://philanthropy.mountsinai.org/ AUSTRALIA ME/CFS CHARITIES: * Emerge Australia - http://emerge.org.au/donate/ * National Centre for Neuroimmunology and Emerging Diseases - http://www.griffith.edu.au/health/national-centre-neuroimmunology-emerging-diseases UK ME/CFS CHARITIES: * UK Gut Microbiota Project (IiME) - http://www.investinme.org/LDR%20UK%20Gut%20Microbiota.htm * ME Association (Ramsay Research Fund) - http://www.meassociation.org.uk/how-you-can-help/making-donations/ * ME Research UK - http://www.meresearch.org.uk/support-us/online-donation/ * Action for ME - https://www.actionforme.org.uk/make-a-difference/donate/donate-online/ IRELAND ME/CFS CHARITIES: * Irish ME Trust - http://www.imet.ie/imet_website/donate/ * Irish ME/CFS Association - http://www.irishmecfs.org/info.html * Hope 4 ME & Fibro Northern Ireland - https://charities.everyclick.com/donate?cid=13170&cn=hope-4-me--fibro-northern-ireland CANADA ME/CFS CHARITY Nightingale Research Foundation http://www.nightingale.ca/ NEW ZEALAND ME/CFS CHARITIY The Associated New Zealand ME Society (ANZMES) - http://anzmes.org.nz/tips-advice/donate/ FRANCE ME/CFS CHARITIY Association Française du Syndrome de Fatigue Chronique - http://www.asso-sfc.org/asfc-faire-un-don.php NORWAY ME/CFS CHARITIY ME-Forskning - http://me-forskning.no/gave/ SWEDEN ME/CFS CHARITIY Riksföreningen för ME-patienter http://www.rme.nu/ BELGIUM ME/CFS CHARITIY Wake-Up Call www.wakeupcallbeweging.be GERMANY ME/CFS CHARITIY Lost Voices Stiftung http://www.lost-voices-stiftung.org/informationen/informationen-f%C3%BCr-%C3%A4rzte/ FIND ME AT: FACEBOOK https://www.facebook.com/WithGustoTV/ TWITTER https://twitter.com/WithGustoTV INSTAGRAM https://www.instagram.com/WithGustoTV/ SOURCES: Sufferer numbers: http://www.chronicdiseaseimpact.org/ebcd.taf & http://www.chronicdiseaseimpact.org/state_sheet/USA.pdf The economic impact of chronic fatigue syndrome (2004) - http://resource-allocation.biomedcentral.com/articles/10.1186/1478-7547-2-4 http://www.healthrising.org/blog/2015/07/27/reason-chronic-fatigue-syndrome-and-fibromyalgia-lousy-funding/ http://www.healthrising.org/blog/2015/07/29/nih-blindspot-reason-mecfs-fibromyalgia-poor-funding/ https://en.wikipedia.org/wiki/Disease_burden http://solvecfs.org/measuring-disease-burden-how-and-why/ The Economic impact of ME/CFS: Individual and societal costs ://dynamic-med.biomedcentral.com/articles/10.1186/1476-5918-7-6 NIH Disease Funding Levels and Burden of Disease - http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0016837 GLOBAL BURDEN OF DISEASES, INJURIES, AND RISK FACTORS STUDY 2010 https://www.healthdata.org/sites/default/files/files/country_profiles/GBD/ihme_gbd_country_report_united_states.pdf WHO Burden of disease: DALYs: http://www.who.int/healthinfo/global_burden_disease/GBD_report_2004update_part4.pdf (pg 45) Funding Demands: http://www.meaction.net/2015/12/17/tell-congress-to-increase-me-funding/ https://www.washingtonpost.com/news/to-your-health/wp/2015/07/20/dear-dr-collins-im-disabled-can-nih-spare-a-few-dimes/ http://www.theatlantic.com/health/archive/2015/10/chronic-fatigue-patients-push-for-an-elusive-cure/409534/ ME Activist Basics: Bird-Dogging and YOU! - http://www.meaction.net/2017/02/02/me-activist-basics-bird-dogging-and-you/ This incredible visualization explains what kills Americans at every age - http://www.vox.com/2016/5/10/11608064/americans-cause-of-death Australian Department of Health pins its hopes on NIH research - https://emerge.org.au/australian-department-of-health-pins-its-hopes-on-nih-research/ #.WJr_en9Ka7I Senator asks medical research council about ‘remarkably small amount of funding since 2000’ and are they funding GET or CBT for ME/CFS - https://www.facebook.com/SenatorLudlam/videos/vb.17351204469/10153980238139470/?type=2&theater