truly's video: There s Only 2 Sets Of Twins Like Us In The World MY EXTRAORDINARY FAMILY

SUBSCRIBE to Truly: http://bit.ly/Oc61Hj MEET the twins battling a one-in-two-million condition that is slowly turning their muscles to bone. Lucy and Zoe, 30, from Northern Ireland, were both born with fibrodysplasia ossificans progressiva (FOP). The condition, which is so rare that the sisters are one of just three sets of twins in the world known to have it, causes muscle tissues and tendons to be replaced by bone, growing outside the skeleton. Zoe said: "Your body becomes frozen, like a statue." After being diagnosed aged eight, despite the medical challenges they faced, they enjoyed a happy childhood. But as adults, they have become more affected by the condition - with Zoe now requiring a walker or wheelchair to get around. Knowing exactly how the other is feeling means they have forged an unbreakable bond, and often document their adventures together on Instagram, where they are both trying to raise awareness of FOP. Though it is uncertain how the condition will continue to progress in the future, both women are determined to stay positive. Lucy concluded: "FOP is so unpredictable, so all we can do is love life and live life." Socials: https://www.instagram.com/a_littlebitoflife/ Videographer: Paddy Murray Producers: Erin Cardiff, Kim Nguyen Editor: Ethan Edwards, Helen Mckee If you have an amazing story and want to appear on the show, please email trulycasting@futurenet.com and the team will be in touch! For licensing and archive requests, please email the licensing team: licensing-archive@futurenet.com Click below to follow your favourite Truly shows on social media! TikTok: Truly - https://www.tiktok.com/@truly_show Transformed - https://www.tiktok.com/@transformedshow Love Don’t Judge - https://www.tiktok.com/@lovedontjudgeshow Snapchat: Born Different - https://bit.ly/3XluKiQ Hooked On The Look - https://bit.ly/3Xi0UM6 My Extraordinary Family - https://bit.ly/3XkEDNJ Love Don’t Judge - https://bit.ly/3Z05bFe Dating Different - https://bit.ly/3XkRbEU Miami Muscle - https://bit.ly/471TQX8 Rahki’s World - https://bit.ly/3yL9lX3 Brand New Me - https://bit.ly/3MtxpRb Bling Life - https://bit.ly/3Xi0Agv Transformed - https://bit.ly/45bDs3R Shake My Beauty - https://bit.ly/3Z18hZH Facebook: Born Different - https://www.facebook.com/BornDifferentShow/ Hooked On The Look - https://www.facebook.com/HookedOnTheLook My Extraordinary Family - https://www.facebook.com/myextraordinaryfamilyshow Love Don’t Judge - https://www.facebook.com/lovedontjudgeshow Shake My Beauty - https://www.facebook.com/ShakeMyBeauty Truly - https://www.facebook.com/TrulyShow/ Instagram: Truly - https://www.instagram.com/trulyshow Born Different - https://www.instagram.com/borndifferentshow/ Shake My Beauty - https://www.instagram.com/shakemybeauty/ Hooked On The Look - https://www.instagram.com/hookedonthelookshow/ Love Don't Judge - https://www.instagram.com/lovedontjudgeshow/ WhatsApp: Truly - https://whatsapp.com/channel/0029Va7rMHN3LdQb9EImSq1k Born Different - https://whatsapp.com/channel/0029Va7LtVj5vKAECosskZ3W Shake My Beauty - https://whatsapp.com/channel/0029Va6zwHg3QxRwc7oziV2f Hooked On The Look - https://whatsapp.com/channel/0029Va73ZzGFsn0jE5Qccg2K Love Don't Judge - https://whatsapp.com/channel/0029Va6nERS3wtb0ygxXSl3X My Extraordinary Family - https://whatsapp.com/channel/0029Va7KtwY4Y9lltHCqba2N Transformed - https://whatsapp.com/channel/0029Va7EJ2y4inor5ddlOe1z