truly's video: I Have 15 Screws In My Head To Straighten My Spine BORN DIFFERENT

SUBSCRIBE to Truly: http://bit.ly/Oc61Hj 27-YEAR-OLD Steffni was born with a condition that usually only affects males - in fact, her case is so rare that she is thought to be "one in 50 million." Duchenne muscular dystrophy (DMD) is a progressive condition that causes the muscles throughout the body to become weaker over time. When Steffni was diagnosed at three years old, her mom Sally was told that her daughter would not make it past seven years old and despite defying those expectations, her muscles were soon unable to support her spine and she developed severe scoliosis - her spine "curved into a 'S'" shape. This in turn put pressure on her right lung, so doctors suggested operating to glue 15 screws to her skull, connected to a circular band of metal around her head - known as a 'Halo'. The Halo could then be connected to cables above Steffni's head and pulled tight, to stretch out her spine and slow the progression of the scoliosis. Steffni was hoping to have surgery to correct the curve of her spine, but when this was deemed too risky for her, the Halo became permanent - Steffni will live with it for the rest of her life. While she struggled growing up with frequent stares and judgement due to the way the Halo looked, Steffni gradually learned to accept her situation with the support of her mom and brothers Trey and Tyrone. Now, Tyrone sees his sister "living to her best and doing what she likes to do" - with Trey putting this down to his sister being "the strongest person I know." And in typical Steffni fashion, she has found silver linings - like being able to take steps in her special "walker", something she never expected to be able to do as an adult. Now, Steffni's mission is to use her platform as a content creator to reach other young people with disabilities to remind them that if they are having a bad day, "it's just a bad day - not a bad life". Follow Steffni: https://www.tiktok.com/@steffswrld2.0 https://www.instagram.com/steffswrld_ Credits: Videographer: Walter Mather Series Producer: Kim Nguyen Video Producer: Tom Buckman Casting Producer: Laura Conder Editor: Dalene Low If you have an amazing story and want to appear on the show, please email trulycasting@futurenet.com and the team will be in touch! For licensing and archive requests, please email the licensing team: licensing-archive@futurenet.com Click below to follow your favourite Truly shows on social media! TikTok: Truly - https://www.tiktok.com/@truly_show Transformed - https://www.tiktok.com/@transformedshow Love Don’t Judge - https://www.tiktok.com/@lovedontjudgeshow Snapchat: Born Different - https://bit.ly/3XluKiQ Hooked On The Look - https://bit.ly/3Xi0UM6 My Extraordinary Family - https://bit.ly/3XkEDNJ Love Don’t Judge - https://bit.ly/3Z05bFe Dating Different - https://bit.ly/3XkRbEU Miami Muscle - https://bit.ly/471TQX8 Rahki’s World - https://bit.ly/3yL9lX3 Brand New Me - https://bit.ly/3MtxpRb Bling Life - https://bit.ly/3Xi0Agv Transformed - https://bit.ly/45bDs3R Shake My Beauty - https://bit.ly/3Z18hZH Facebook: Born Different - https://www.facebook.com/BornDifferentShow/ Hooked On The Look - https://www.facebook.com/HookedOnTheLook My Extraordinary Family - https://www.facebook.com/myextraordinaryfamilyshow Love Don’t Judge - https://www.facebook.com/lovedontjudgeshow Shake My Beauty - https://www.facebook.com/ShakeMyBeauty Truly - https://www.facebook.com/TrulyShow/ Instagram: Truly - https://www.instagram.com/trulyshow Born Different - https://www.instagram.com/borndifferentshow/ Shake My Beauty - https://www.instagram.com/shakemybeauty/ Hooked On The Look - https://www.instagram.com/hookedonthelookshow/ Love Don't Judge - https://www.instagram.com/lovedontjudgeshow/ WhatsApp: Truly - https://whatsapp.com/channel/0029Va7rMHN3LdQb9EImSq1k Born Different - https://whatsapp.com/channel/0029Va7LtVj5vKAECosskZ3W Shake My Beauty - https://whatsapp.com/channel/0029Va6zwHg3QxRwc7oziV2f Hooked On The Look - https://whatsapp.com/channel/0029Va73ZzGFsn0jE5Qccg2K Love Don't Judge - https://whatsapp.com/channel/0029Va6nERS3wtb0ygxXSl3X My Extraordinary Family - https://whatsapp.com/channel/0029Va7KtwY4Y9lltHCqba2N Transformed - https://whatsapp.com/channel/0029Va7EJ2y4inor5ddlOe1z